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Lachlan's Legacy
Suzette & Matt Down-
Lachlan's Legacy
Story
Our hearts are bursting with love for our beautiful little boy Lachlan, born 21 February (2013) weighing 3550 grams and measuring 53cm. He is everything we could have ever dreamed of in all ways but one: Our joyous celebration of his arrival was soon followed by the sad news that we would be spending less time together as a family than we would have liked. Lachlan was diagnosed with Type 1 Spinal Muscular Atrophy (SMA) 29 February.
May 17 (2013) was Lachaln's last day here with us; he is now our little angel.
There is no cure for SMA - yet!
There is also very little awareness of this genetic disease within the general population.
On behalf of our precious Lachlan, please make a donation to the Spinal Muscular Atrophy Association of Australia. Let this be his gift to other families affected by SMA; let this be his legacy.
Your compassion and contribution are greatly appreciated.
With love & gratitude, Suzette & Matt xx
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Spinal Muscular Atrophy Association of Australia Inc
The Spinal Muscular Atrophy Association of Australia Inc. is the first national service supporting families and individuals affected by Spinal Muscular Atrophy. As a non-government funded charity we rely solely on philanthropic bodies and fundraising to provide support, information and assistive technology to members. Spinal Muscular Atrophy is a genetic disease divided into 4 types; leading to progressive muscle weakness and wastage. This wastage of muscles not only affectes the sufferes external muscles like arms and legs, but all their internal muscles like breathing, coughing and swallowing. The Associations Equipment and Resource Library has been developed to allow members to utilise specialised equipment, aids, and educational tools. ABS documents that 52 Australian lives 1. are lost to SMA and related syndromes ( Motor Neurone disease) each month. As there is no treatment, much less a cure, our fundraising also contributes to vital research. With 1 in 35 people indiscriminately carrying the SMN gene; greater awareness provided by SMA Australia alone is crucial to the education of future generations.
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