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10 For Duchenne
10 For Duchenne
Story
Doing 10 For Duchenne in support of Levi and all boys living with this condition!
We will be completing a 10km family walk in October to raise much needed funds and awareness for Duchenne Muscular Dystrophy (DMD). We are doing this in support of our beautiful, caring and cheeky 3 year old son Levi, who has been diagnosed with this devastating and heart-breaking disease.
DMD is a rare yet most common form of genetic muscle wasting diseases affecting around 1 in 3,500 boys. It is a progressive disease causing increasing weakness of the muscles in the arms and legs, breathing muscles and the heart. Children affected by DMD generally lose the ability to walk by the age of 12 and the average life expectancy is just mid 20's.
There is currently NO CURE for this devastating disease!
Our aim is to raise as much funds as possible to go towards trials so that a cure can be found in time to save Levi and all the other boys currently living with Duchenne and Becker (a milder form of DMD), so that they can live a long and happy life.
Your donation to Save Our Sons will go towards the funding of clinical trials as well as programs and resources that improve the quality of life for those in all stages of Duchenne and Becker.
From the bottom of our hearts, we can't thank you enough for your support. It really means the world to us.
Pete, Kristy, Levi & Archie xx
Donations made through this platform are secure and will be remitted directly through to Save Our Sons.
Save Our Sons INC
Save Our Sons Duchenne Foundation was founded in 2008 and is now the peak body for those living with Duchenne and Becker muscular dystrophy across Australia. Our vision is to find a cure for Duchenne & Becker muscular dystrophy.
Duchenne is an X-linked genetic condition that affects 1 in 3500 boys and in very rare cases 1 in 50 million girls. It is the most common and most severe form of muscular dystrophy and is also known as dystrophinopathy, which refers to a mutation in the dystrophin gene, with a similar milder form of the condition called Becker muscular dystrophy.
Funds raised go directly towards funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. Save Our Sons aims to make a difference in the lives of all living with Duchenne and Becker muscular dystrophy across Australia.
Our Purpose includes enhancing the quality of life for persons with Duchenne and Becker muscular dystrophy with the ultimate objective of finding a cure for the condition.
To find out more about Save Our Sons Duchenne Foundation, visit www.saveoursons.org.au
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