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Fineshine Carwash Fundraiser
Fineshine Carwash Fundraiser
Story
Hi all,
Last December with the help of our generous customers, family and friends our Fineshine Car Wash Zetland managed to raise an incredible $37,514 which went towards helping find a cure for the muscle wasting condition called Duchenne Muscular Dystrophy. Sadly there is NO CURE. 'Save Our Sons' is the peak body for Duchenne and money raised goes towards clinical trials, putting nurses in children's hospitals and equipment to enhance children's quality of life.
Save Our Sons INC
Save Our Sons Duchenne Foundation was founded in 2008 and is now the peak body for those living with Duchenne and Becker muscular dystrophy across Australia. Our vision is to find a cure for Duchenne & Becker muscular dystrophy.
Duchenne is an X-linked genetic condition that affects 1 in 3500 boys and in very rare cases 1 in 50 million girls. It is the most common and most severe form of muscular dystrophy and is also known as dystrophinopathy, which refers to a mutation in the dystrophin gene, with a similar milder form of the condition called Becker muscular dystrophy.
Funds raised go directly towards funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. Save Our Sons aims to make a difference in the lives of all living with Duchenne and Becker muscular dystrophy across Australia.
Our Purpose includes enhancing the quality of life for persons with Duchenne and Becker muscular dystrophy with the ultimate objective of finding a cure for the condition.
To find out more about Save Our Sons Duchenne Foundation, visit www.saveoursons.org.au
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