Nic's NF Dread Donation

Howdy,

My name is Nicholas William Moll. I haven’t cut my hair for the last eleven years and, for about the previous six years now, my hair has been bound in dreadlocks. My hair is long and awesome. But now the time has come to cut it all off for all the right reasons. That reason is The Children's Tumour Foundation.

This is a charity close to my heart. The Children's Tumour Foundation support, research and raise awareness for Neurofibromatosis (or NF) and the families affected by it. My family is one of these, with my wife and three children sharing the condition. There are three types of NF (NF type one, NF type two and schwannomatosis). My family is affected by type one. Neurofibromatosis type one is one of the most common genetic abnormalities affecting one in three-thousand people. It is more common than Huntington's Disease, cystic fibrosis and Duchene Muscular Dystrophy combined. Common as it is, there are comparatively few people have heard of NF. So it is important to my family that some awareness is raised for this condition. We are incredibly lucky that, so far in we are mildly affected - though the unpredictability of the condition means that could change at any time.

Having NF means yearly MRI scans for my wife to monitor her optical nerve glioma (tumour on the optic nerve) and for the kids, at the moment, it means yearly paediatric visits followed by regular sight tests and eventually (once they're old enough to have a scan without being put under a general anaesthetic) regularly MRI scans as well. This is all normal in terms of monitoring the condition.

So, for the privilege of telling ya’ll about this condition and the opportunity for medical science to get a step closer to some deeper understanding about NF, I’m looking to raise some money. If the total reaches five-thousand dollars, I am not only going to cut off all fifty-four of my dreadlocks but razor shave my head. Your donation will not only make me look ugly, but raise funds and awareness for NF - a condition that affects not only ours but thousands of lives.

Cheers,

Nicholas William Moll

Also, come check out my Dread Donation facebook page! https://www.facebook.com/nicdreaddonation