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Bec Kowald
Rebecca Kowald
Bec Kowald
Story
This kid lives with Hydrocephalus. I don’t know what it’s like to be this kid, but I know what it’s like to love him. I also know there are thousands like him – kids and adults – loved by people like me. We are a special team with a special bond.
My own special team is trying to create change. We are doing something truly courageous, at least for us. We have entered the Ironman 70.3 on the Sunshine Coast on 10 September, 2017. We will swim 1900m, we will ride 90km and I personally will run 21km. It’s a challenge. A challenge for change.
Speaking of change, we could use some of yours.
There is currently no cure for Hydrocephalus, just temporary measures – shunts – designed to relieve the pressure, but full of unknowns. We’re waiting for a breakthrough, but breakthroughs take time and a whole lot of knowledge. This knowledge comes in the form of a National Shunt Register; hasn’t got much traction yet, but can help us learn more about shunts and start to reduce the pressure that comes with the unknown. It costs $200,000 per year to maintain and receives no government funding.
The register has the ability to change lives – with it, we are one step closer to a breakthrough. A breakthrough that helps not only those living with hydro, but those that love them too.
And I would love your help as we challenge ourselves to create change. Words of encouragement are accepted, but donations* in support of our Ironman show you’re truly part of our team. Here’s how.
Thank you for having the courage to create change. I look forward to welcoming you to the team.
* Donations made through this platform are secure and will be remitted directly through to my charity of choice The Hydrocephalus Support Association.
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The Hydrocephalus Support Association Incorporated
The Hydrocephalus Support Association ;(HSA) is a not-for profit organisation whose core mission is to support people with hydrocephalus and their families to overcome disadvantage, strengthen their abilities and successfully live independently. The philosophy of the organisation is underpinned by peer support and advocacy, and the association is run by volunteer members for the benefit members.
The HSA undertakes a number of activities to achieve the core mission of the organisation, including:
- Quarterly meetings and newsletters to bring people with hydrocephalus and their families together.
- Awareness raising and dissemination of information, research and treatment of hydrocephalus
- A national conference held by the HSA every three years.
- Advocacy for individuals with hydrocephalus to support independent living.
- Volunteer welfare officers to support members.
- A members’ only Facebook group to facilitate sharing of information about and experiences with living with hydrocephalus.
- Dedicated fundraising and grant application programs to raise funds to:
- Enable the HSA to continue to support members and their families;
- Fund research into the causes, treatments and long-term outcomes for people living with hydrocephalus.
These programs include fundraising events and applications to philanthropic, not-for-profit, private and government organisations for funding.
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