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Robert Bruce

$223 of AUD $50,000 target.

Raised by 0 people in days for Muscular Dystrophy NSW

Biggest Supporters

AUD $106.00

Anthony J Osmond

AUD $53.00

Daniel Bruce

Rob On The Water

Story

Hi guys,

I wish to bring your attention to the disease Muscular Dystrophy, Muscular dystrophy is a neuromuscular, genetic disorder which results in the progressive deterioration of muscle strength and function. The most common form in childhood is Duchenne Muscular Dystrophy, which can see a young boy using a manual wheelchair by the age of 8, and being completely dependent on an electric one by his early teens. Life expectancy for this disorder is usually only until early adulthood.

When i was young i was diagnosed with Beckers Muscular Dystrophy and told I wouldn't be able to walk by the time I reached adulthood. So in my stubbornness i made a decision that I would walk till I was 40 years old.

Throughout the journey to 40 I always wanted to do something big to contribute to the research needed to cure this disease so other children growing up with it don't have the struggles i faced. I turned 40 last November and I'm still standing, albeit a little slow on stairs lol. I considered a lot of different options on how to do this and being that i love water and being outdoors kayaking a large distance feels like the best way to achieve what I am setting out to do. Quite simply i googled the longest river in Australia, the Murray/Darling being of course the longest, and proceeded to investigate the river and found it to be the ideal course.

On 1st of October 2017 I will be embarking on the journey to solo kayak the Murray River from Albury NSW to Adelaide SA, it is a journey of appoximately 2000kms to raise awareness and raise money for crucial research into a cure for this disease. It is a massive undertaking and I know it is going to be the greatest test of my physical and mental determination but just like my decision to fight and keep walking I know i will row that last mile as i reach the end of the Murray at Adelaide.

My greatest hope through this is to see other people diagnosed with Muscular Dystrophy to see that no matter what we can find a way to do what we love and most want in life. Never give up the fight!

So here's where you come in.

I need you all to dig deep, anything you can spare so we can raise funds to help with the research for a cure for this terrible disorder. Help me give the kids today a chance to reach their dreams!

 

The journey is proudly sponsored by 

 

 

https://www.facebook.com/Robonthewater/

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Muscular Dystrophy NSW

Muscular Dystrophy is a devastating neuromuscular disorder, which results in the progressive deterioration of muscle strength and function. It affects 24,000 people in Australia and is more prevalent than Cystic Fibrosis, Huntington's Disease and Tay Sachs Disease combined. The most common form is Duchenne Muscular Dystrophy, which primarily affects boys. Onset of this condition is between 3 and 5 years of age and the disorder progresses rapidly with most boys completely dependent on an electric wheelchair by their early teens. Life expectancy for this disorder is usually only until  their early thirties.

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Created by

Robert Bruce

for Muscular Dystrophy NSW

Fundraising for

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Recent Supporters

AUD $223 of AUD$50,000 target

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