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Samantha & Mariette
Samantha Hoey
Samantha & Mariette
Story
Hi, my name is Samantha, and I’m 16 years old. My brother Matthew, 27, and sister Mariette, 24, both have NF1. They’ve been impacted by intellectual disabilities and constant health complications thoughout their lives.
Matthew has two inoperable plexiform tumours, had his leg amputated when he was 14, and has lesions on his brain. Doctors have told Matthew that all they can do now is watch the tumours grow.
Mariette had a lump removed from her face, resulting in scarring. She has continual monitoring on thyroid nodules which have the potential to turn cancerous at any time.
Both of my siblings face an unknown future, living with ongoing pain and uncertainty. My hope and dream is that doctors discover more effective NF treatments. I know that to make this happen, more research is urgently needed.
I’ve recently discovered a love of ice skating and have joined an ice hockey team. I decided to use my time on the ice to raise funds for NF research, to help bring hope to not just my family but to every family living with NF. My friends and family were a great support and helped me raise over $500 last neurofibromatosis month and this month I'm going to try doubling it with the help of my sister Mariette.
With 100% of the funds, I’ve raised for Flicker of Hope going directly to research I know I’m helping to make a difference!
Donate to make a difference
Flicker of Hope Foundation Limited
The Flicker of Hope Foundation was inspired by Zoe – who was diagnosed with NF at four months of age. Zoe loves to dream big … and she dreams of a bright future for all those affected by NF. In 2018 Zoe and her family established Flicker of Hope to raise much needed funds to support researchers in their quest to find positive treatments and improve the quality of life for those impacted by NF. Thanks to the generous support of individuals, businesses, community and school groups Flicker of Hope has raised over $3 million in six years. 100% of this amount has been donated to fund essential research into NF. Please join us on this journey – a journey that may be life changing for those impacted by NF.
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