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Team Spencer
Zoe Jones
Team Spencer
Story
🌟 Team Spencer: Shining a Light on NF1
I’m Spencer, and I’ve been living with Neurofibromatosis type 1 (NF1) since I was three months old. NF1 is a genetic condition that causes tumours to grow on nerve endings throughout the body, leading to a range of health challenges including chronic pain, learning difficulties, and an increased risk of cancer. 
May is NF Awareness Month—a time to educate, advocate, and support those affected by this condition. This month, I’m launching “Team Spencer” to raise funds for the Flicker of Hope Foundation, an Australian charity dedicated to funding research and education for NF. 
💙 Why Flicker of Hope?
The Flicker of Hope Foundation was established in 2018 by the Petropoulos family after their daughter Zoe was diagnosed with NF at four months old. Their mission is to support researchers in finding positive treatments and improving the quality of life for those impacted by NF.  
What sets Flicker of Hope apart is their commitment to transparency and impact: 100% of funds raised are directed to support research into NF. They operate on a no-cost basis, with no staff, administrative, or overhead costs deducted from donations received.  
To date, Flicker of Hope has raised over $3 million in just over six years, all of which has been donated to fund essential research into NF. 
🛤️ My Journey
Living with NF1 has been a journey filled with challenges and resilience. From early childhood through adulthood, I’ve faced numerous medical appointments, treatments, and the emotional toll that comes with a chronic condition. Despite these hurdles, I’ve found strength in community, hope in research advancements, and purpose in advocacy.  
🎯 Our Goal
Our aim is to raise $5,000 to support the Flicker of Hope Foundation’s ongoing research initiatives. Every dollar brings us closer to better treatments, increased awareness, and, ultimately, a cure for NF. 
🙌 How You Can Help
• Donate: Every contribution, big or small, makes a difference.
• Share: Spread the word about NF and our fundraiser by sharing this page with your network. 
• Participate: stay tuned. Mum is organising a fun night out for everyone to come celebrate and help raise money.
Together, we can shine a light on NF and bring hope to those affected. 
Thank you for supporting Team Spencer and the Flicker of Hope Foundation.
Donate to make a difference
Flicker of Hope Foundation Limited
The Flicker of Hope Foundation was inspired by Zoe – who was diagnosed with NF at four months of age. Zoe loves to dream big … and she dreams of a bright future for all those affected by NF. In 2018 Zoe and her family established Flicker of Hope to raise much needed funds to support researchers in their quest to find positive treatments and improve the quality of life for those impacted by NF. Thanks to the generous support of individuals, businesses, community and school groups Flicker of Hope has raised over $3 million in six years. 100% of this amount has been donated to fund essential research into NF. Please join us on this journey – a journey that may be life changing for those impacted by NF.
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